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Messages - Ria1712

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16
TTC / Re: TTC buddy
« on: June 12, 2019, 02:14:41 pm »
Ah that's good, yeah I was told if 2 lots of reduced movements they usually refer for a scan. How did the scan go?
Leo did the same when we went in started moving when mo itors were on. He doesn't like things in his space, like if I am leaning my hands on him while in my phone or anything like that he starts kicking till I move haha.

17
TTC / Re: TTC buddy
« on: June 10, 2019, 06:41:59 pm »
Hey Angela, how did the hospital go? Nearly ended up there today myself as had pink blood on tissue this morning but was told to just keep an eye on it and had nothing since.
I made the decision today to bring my maternity leave forward a bit as I'm really starting to struggle. I now finish on the 26th of this month, which is good as gives me more time to be home and relax and make sure everything is ready. And will help as I will have a lot of appointments in my last few weeks so will be easier then having to sort everything out with work. Can't believe I'm 31 weeks, or that I'm even pregnant after all this time. Just hoping that the little blood this morning was not the start of showing and that he stays put a little longer.

18
TTC / Re: TTC buddy
« on: June 07, 2019, 01:22:38 pm »
Hi ladies, just read to catch up on everything.
Angela I hope your nephew makes a quick recovery and continues to do well.

Nikkilou, sorry to hear you lost one of the triplets but let's hope the other 2 keep progressing and doing well. I think it's more common then people think to loose one baby with multiples as I've heard a lot of stories on my ivf pregnancy page of loosing one of twins or triplets. It's a lot harder on the body and a lot more complications.

Me and Leo are doing well, haven't had anymore appointments since my midwife one 2 weeks ago and I will see her again next week. We went to MAU last week with reduced movements and once monitors were on he started moving but not as much as normal but went back to normal the next day and the hospital was concerned. Our next scan isn't till 20th but hoping we will get our c section date then to start the planning and going to ask about having a spinal block instead of epidural as heard its meant to be better recovery and more effective. Also starting to really struggle with work and being exhausted so possibly going to talk about going off a little earlier as it will be more worth it then reducing my hours.

19
TTC / Re: TTC buddy
« on: May 25, 2019, 06:49:29 am »
Bud, first good luck in your journey and welcome to the group. Your cramps could be a few things such as ovulation or just normal stomach cramps. Nothing to worry about. Are you tracking your ovulation?

Angela, I have no idea how I haven't put on more as even though my appetite isn't great and I do cook healthy meals I have had takeaways and a lot of sweets and cake etc.

Chantelle good luck, I never found out the levels of hcg just got told it was very high so possibly twins but ended up just being one. All I have to say about the scan is to relax it can take them a few minutes to find baby which really scared me but he implanted as far away as he could haha. Also doesn't help because your ovaries will still be a little big especially if you have any OHSS symptoms.

Saw my gp yesterday who confirmed it is oral thrush, not sure if it's the medicine for that or baby but started with heartburn last night too. Suppose I've got off lightly symptom wise during this pregnancy so can't complain.

20
TTC / Re: TTC buddy
« on: May 23, 2019, 11:27:09 am »
Hi, didn't manage to get an appointment other then for this afternoon but I don't have the energy to go up there again so going to try tomorrow. Its not sore so isn't massively bothering me. My midwife has said with us now definitely having the section they don't want me to start collecting till 37 weeks as they don't want me going into spontaneous labour but she said the nurses at the hospital may advise different and if they do go with them. I may have a look I to that book, thank you. I've managed to only put on 4kg so far in pregnancy too which I'm really proud of considering baby is around 3 pound now, it was something I wasn't too bothered about but I didn't want to put too much on with doing so well to loose all my weight to have ivf.

21
TTC / Re: TTC buddy
« on: May 23, 2019, 05:27:24 am »
Chantelle, that's really good we only got 4 eggs with 3 fertilising and one put back in, none were able to be frozen. They usually tell you to keep taking the pessaries until either after your first scan if your having a early one with them or until your 12 weeks. Just it helps to lower chance of miscarriage, I know people that have been given them without ivf because of reoccurring miscarriage. I didn't mind egg collection as I was sedated but was awake during the whole thing just talking to the nurses, I could feel them poking around but no pain and went straight to sleep after. I hated transfer as with a tilted uterous it was very painful for me and I was scared of contracting.

Angela I think I'm going to call up my gp this morning and see if I can get an appointment around my midwife one just don't want to go up for my midwife appointment and then go back later to see the doctor, especially when back at work tomorrow.

Although on the bright side I started leaking a bit of colestrum yesterday which hopefully means my milk will come through when he's here and I can use breatmilk to help him fight infections.

22
TTC / Re: TTC buddy
« on: May 22, 2019, 06:22:23 pm »
Fair enough loads of people have said to me why you packing you've got plenty of time. But at the same time I have baby's bag to pack, my bag for in the hospital and then a suitcase for our accommodation. I'm glad I've started as I feel a bit more relaxed and I have what they think may be thrush in my mouth and been told it will be stress. Got to go see my gp (well a gp because mine walked out the surgery and said he's never coming back) and see what I can have for it as chemist didn't want to suggest anything and wasn't sure if it was definitely thrush as he said if it is its only early stages. Not sure if my midwife can check tomorrow.

23
TTC / Re: TTC buddy
« on: May 22, 2019, 10:31:36 am »
Yeah I get that. I think the reason I am packing early because its the o ly thing I really have control over at the minute. Its helped me to remember all the little things I'd forgot to get too. Plus obviously he will be here up to 2 weeks early so only have around 10 weeks left.

24
TTC / Re: TTC buddy
« on: May 22, 2019, 05:17:18 am »
Nikkilou, so glad everything is going well at the minute. I had no explanation for the bleeds I had either. I can imagine it was definitely hard for them to try see all 3 heartbeats, I only have one and he's always been a bugger when it comes to checking his heartbeat even at my scan at 7 weeks because he implanted at the furthest point possible.

Congratulations chantelle, I hope the Ivf process was kind to you as I know some people have a really hard time with the medications. Are you still having pessaries or progesterone injections?

Angela glad the baby show went well seen there were some celebs about and someone I know had a stall on there and said it was a good weekend. I wished I lived closer to them.

So update on me, my pain in my hips and below the bump I think is made worse by my ibs as the other day I was bunged up (sorry for tmi) and I was in agony. Still going o speak to my midwife about it tomorrow as also had a few dizzy spells where I've felt faint but I don't know if that's the warm weather. I started our packing yesterday got a few more bits to get but think it's helped me to relax and sort out some of baby's room. Hoping my partner wakes up feeling better today to put his furniture together but he's having a lot of stomach problems so not sure yet.

25
TTC / Re: TTC buddy
« on: May 17, 2019, 06:23:04 pm »
Hi ladies, I agree Angela glad you insisted. I was always told any concerns call and go in, my midwife also said if they say it's not needed to call her and she will tell them I'm going in.

We will have the c section at 39 weeks as the bigger he is the better. I'm going to speak to my midwife though on Thursday as I'm concerned about it all as my consultant said it won't start being planned till after the next appointment when il be mealy 33 weeks. I know it would normally be enough time but I really don't feel like it is in our situation and it's stressing me out. His condition is only the 6th case they have treated in the UK, the oldest would be nearly 7 but sadly passed when she was just under 2. The oldest survivor is 5 and the only one to receive all procedures, 2 have had transplants and 1 is not eligible for his 4th surgery so is waiting for a transplant. 4 of the 5 have been treated at our hospital which makes me feel a little more hopeful. I'm also concerned that even though they took 2 measurements and his weight they didn't fully check his growth where my normal consultant said they would and cancelled my growth scans. Hopefully my midwife will be able to help with it all but not sure with his weight being okay if they will still do growth scans or not. I just feel like waiting another 5 weeks for a scan is a long time, especially with all the ligament pains I am getting too.

26
TTC / Re: TTC buddy
« on: May 17, 2019, 09:02:14 am »
Okay ladies so thought is do a quick update. Yesterday we toured the hospital Leo will be at and our accommodation and honestly it all amazed me. The accommodation was stunning and like a hotel, the wards were all small with plenty of staff meaning you have some privacy but we have been told due to the condition they are going to try get us into a room on our own.

We also had our scan that showed his artial spectum has thickened meaning the opening is very narrow and nearly closed so a c section is the way forward with surgery mi utes later. But despite everything he's growth is still doing really well and he's estimated weight is 2 pound 11 which is amazing.

27
TTC / Re: TTC buddy
« on: May 15, 2019, 03:58:54 pm »
Yeah we would get it when he's first born till he's 12 weeks but if we're not home by then we would loose it till he comes home. But then obviously he has another 2 surgerys after his first so it could happen each time. I think it's a stupid rule, it used to be the same for disability too but that's been changed.
Nikkilou, my mum has said that and he friend has offered to do fundraising for us but at the minute we're going to just wait. The first 14 weeks I  get full pay and it will give us time to see what we're entitled too and if we will be okay. We have a long round to go down and if we do end up going to America for treatment it will definitely be something we do to get us there and my auntie along with her church have offered to pay any medical fees but he's actual cost of consultation and surgery will be free due to it being a medical trial. I think that's why I am now set of makigg sure he's nursery is finished and we have everything so we don't have to worry about all that.

I think the hardest bit is just as well both work but we're not on a lot of hours but more then enough to make us not entitled to some extra help. There is points during my maternity we will get benefits to help but it won't be a lot and we don't qualify for anything like the sure start grants and vouchers where as the girl I've been speaking to gave up work after her first and her partner has a good job but she still qualifies for the extra help. There are social services to help us talk through all the financial stuff at the hospital when he's here though we just need to prepare as much as possible before he's here.

28
TTC / Re: TTC buddy
« on: May 14, 2019, 05:47:41 pm »
Hi Angela yeah I completely agree, when no medical conditions I wouldn't of tried collecting before full term. Like you said it does come with possible early labour but it can help him better to recover from surgery and help with infection etc even if my milk hadn't come in.

I think I am coping okay at the minute missdyan. I do have good and bad days but today is a good one. We find out a more definite plan on Thursday, obviously he will always need surgery at a week old, 6 months and 3-5 years old for his Hlhs. The additional surgery will either be done minutes after birth or during his first surgery depending on if his arterial spectum has closed further or not. It is scary to think about especially if he needs his first surgery straight after birth as its around 7 hours long and it will mean I need a c section done at the hospital he needs to be at which doesn't actually have a maternity unit so a team from our local hospital will be coming with us to keep an eye on me but if any complications happen I will be transferred to our local, so possibly won't get to see him after his surgery and obviously would be updated by phone or doctors. It terrifies me as we agreed if I have to be transferred my mum will come with me and my partner will stay with baby so if anything was to happen were both without each other. Age expectancy in America is 35+ and here in the UK is 23+ this is just because that's how long the procedures have been going and the oldest living survivors. We have been told that no matter what even with surgery it isn't curable and at some point in his life his heart will fail and he will require a transplant we just wouldn't know when. There is current research going on in America with stem cells so we are going to question this with our consultant to see if there is a way we can take part in the tri that's happening either here or to go to America and take part. Financially I thi k we are going to have some struggles but we are trying to sort that the best we can like we are about to make our last payments to pay off our credit cards so we have them as back up and we're putting extra on bills to help too. I have a good maternity package at work which will help us a lot and baby will be entitled to disability allowance which will help as I will be down as his carer. The hospital also have funding to help with paying for things whilst we're there. The only thing that annoys me is if anytime we stay in hospital is 12 weeks or longer we don't get child benefit. Yes it isn't a massive amount and if he was home and didn't have this condition we always said this would be used to go into a savers for the baby but it annoys me that it's more expensive to care for a child in hospital yet we're not classed of being the ones caring for him so our entitlement would stop

29
TTC / Re: TTC buddy
« on: May 14, 2019, 10:56:35 am »
Yeah I have the pain bad under bump I've tried exercises to help and doing the ones for my hip off physio as I have hypermobility but they don't really help.

I need to express as they will have a feeding tube in for a minimum of 2 days after each surgery or until he is okay to feed as he will be paralysed after each surgery and left open chested. They are showing me how to start collecting incase I start leaking but she said don't actively try to get it until after 34 weeks. At the point I can start but just a little each day as we will be delivering early anyway and they are happy for him to come after this point as his weight will be high enough. Obviously it depends if my body is ready etc. We're just hoping to have as much as we can to help get what he needs after surgery. I think obviously it depends on situation as not sure if you seen on the news Angela about Bethan who had the fetal surgery a few months ago, due to baby having spinal bifida, the surgery was a success. She is in my ivf support group and was allowed to start collecting collestrum from 30 weeks as after feotal surgery prem labour is common but she ended up having a planned section at 37 weeks.

30
TTC / Re: TTC buddy
« on: May 13, 2019, 03:02:11 pm »
Omg Nikkilou that is absolutely amazing, hopefully on next scan you will see all 3 heartbeat flickering away on the screen. So happy that things look well so far.

Yeah I'm hoping there are no problems with me breastfeeding Angela but still just keeping a open mind. My step mum got advised to stop after 8 weeks as my little brother would only latch on to one side and she wasn't preducing enough. She carried on doing a mixture of both to make sure he had what he needed and obviously expressed from the other side but also used formula to top him off. Think he was about 11 weeks when he started refusing breast milk so she stopped. We're booking a home appointment at my next midwife appointment to have my midwife come show me techniques for expressing and go through it all with me and also how to start collecting collestrum from 34 weeks if I can as we want to have some frozen to give him through his tube after his surgery.

I completely forgot you had a anterior placenta so yeah movements are a lot more complicated with that. Have you managed to find anything to help with ligament pain, if your having any? Just I'm really struggling at the minute, I'm having next week of work to relax and long baths, paracetamol and massage are not working.

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